March 27, 2011

25+ Month Report

Its been awhile since I have posted a " progress report" so while the little guys are napping, I thought I would try to get one posted!

Jayden has been making progress on all fronts lately!  We are all impressed with his receptive language - he seems to be understanding so much more!  This afternoon I asked him to give me a kiss and he did!  He also knows several words involved with getting dressed (shoes, socks, feet, toes) and will help get dressed...and undressed!!  He will completely take off his own shoes, socks, and shirt (even when we are out!).  His expressive language is still slow coming but he knows how to get a point across regardless and I still think he is saying more words than we understand.  I recently bought a few signing time videos and would like to try actively teaching more signs.

  • Jumps with two legs (new in the past few weeks)
  • Runs (he does keep his arms up for balance and to protect from falling!)
  • Gets in his chair or sits down when asked
  • Signs more, all done, please, help
  • Speaks: more, elmo, mama, bye-bye, up, bath

Current measurements:
  • 36 inches tall
  • 28 pounds

  • Weekly Occupational therapy
  • Weekly Physical therapy
  • Weekly Speech
  • Weekly Therapeutic Riding 
  • Weekly gymnastics class

  • 0.6 mg Genotropin (HGH)
  • 500 mg carnitine fumarate (split into 2 doses)
  • 1.5 tsp creatine monohydrate (split into 2 doses)
  • 100 mg CoQ10 (split into 2 doses)
  • Methylcobalamin B12 injections every 3 days
  • 1/2 tsp Childrens DHA fish oil (split into 2 doses)
  • 1 serving Animal Parade Children’s Multivitamin

March 21, 2011

New Baby has Arrived!

Well, I have to apologize for not having posted much the last few months.  Being pregnant and caring for a two-year old has kept me VERY busy!  Tyler James arrived Friday, March 11th.  We had a very successful planned c-section and everything went perfectly.  We left the hospital Sunday morning after two nights with NO sleep.  We were very happy to return home and recover there!

Here are a few long overdue photos of the little man!

And the proud older brother

March 19, 2011

Is it REAL Food?

When Jayden was born, we decided to implement a holistic diet for Jayden that only included REAL food in its natural state.  It makes his diet very simple to follow:  meat (including fish), vegetables, fruit and limited dairy.  If you don't know what is in it, he doesn't eat it.

I saw this posted on another blog today and had to post it for myself!  This is a great reminder of what REAL food is!

March 2, 2011

Opening Doors

Unfortunately, the blog has been on the back burner for awhile....I must set aside some time to update!

Since Jayden gets into EVERYTHING, we have started locking doors to keep him out of certain rooms.  We keep the key above the door - you know the type of key I am referring to, it looks similar to a bobby pin.  Well, Jayden now tries to use anything similar to unlock the door.  The other day he had a small wrench and a pen, today he tried using a bobby pin.  Its hilarious to watch.  It must be good for fine motor in some small way since he has to get a little object into a little target...

We had an endo appointment yesterday.  His height is good (35 inches is between 50 and 75%) weight is holding steady at 28.5 lbs (50%).  They are using a new lab for bloodwork and his IGF-s came back super high (in the 400's with a reference value at 130) so we are waiting to get results from a second sample.

Today Jayden starts pre-school.  I am looking forward to sending him off but will miss him terribly.