December 7, 2011

I know its been a long time.... here is a quick update!

Ok, So life is crazy.... I never blog. I am SOOOO sorry. Here is a quick update. We went to our annual check in at UC Irvine. Jayden participates in the natural history study there. Dr Gold kindly mentioned he does not present many of the physical traits of PWS, although he does have a few. I guess that is a compliment??

Anyway... the highlight of the visit for me was checking in on Jayden's growth. He is 37.35 inches tall and 33 pounds. This puts him at the 75% for weight for height and between the 50th and 75th percentiles for weight AND height. This is a bit heavier than the PWS specialists want their kids BUT I think it is good for Jayden. He has stayed on the same growth curve for the past 2 years which is what is most important - he hasn't had any huge unexplained jumps in weight. His weight has increased proportionately to his height. YAY!

We are still working on getting him to eat more vegetables. He is now eating carrots which was a huge achievement! He will now eat carrots, tomatoes, avocado, dried snap peas and dried green beans. Of course he continues to LOVE all fruits and nuts. We have really cut back on dairy. He rarely gets any cheese and we give him coconut milk or almond milk instead of dairy beverages. The only dairy he gets regularly is his yogurt for breakfast and dinner - since we add his supplements to yogurt, this works nicely for us.

We have really been focusing on Jayden's speech. He has a half hour on Mondays, a combined speech/OT on Tuesdays and a REALLY GOOD 1 hour session at Innovative Therapy for Kids on Thursday. He is beginning to sing along with songs (if you listen VERY closely you can hear him saying some of the words). He is attempting many more sounds but often needs encouragement to use the appropriate sounds for words.

We are starting to potty train. He is sometimes reluctant to sit on the potty but we have been reinforcing his attempts with music from the WIGGLES (which he loves!) and he will often be successful. I'm hoping to report daytime training is complete sometime soon in the new year!


  1. Sounds like lots of good things! What do you think has helped the most recently with his gains in speech?

  2. I'm not sure if any one thing has helped. I believe part of it is just time.... the other is probably an accumulation of everything we do.