June 18, 2012

Provigil - Day 4

We are giving Jayden 25mg of provigil daily. So far, we have noticed him having a lot of "good days". I haven't noticed anything outstandingly different but there have been small things that all add up.... 1. He seems generally more compliant. When you ask him to do something, he surprises me by following instructions. Is this all the time? NO!! But it is more often than usual. 2. He WANTS to communicate. He HAS to have your FULL attention. He is telling us stories, he is involving us in his circles. Is this new? NO, but the intensity is. 3. He is sleeping in... It has been over a year since Jayden has gone to sleep in his bed and stayed there until morning. Two days now he has slept in his own bed until 5:30. He is there now and I hope I can say tomorrow that he has stayed in his bed again!! Overall, I feel that he is simply having "good" days. He is easy going, overall happy and his meltdowns seem fewer and less intense. I hope to continue to see improvements. We will stay at 25mg for a few weeks before going to 50mg.

1 comment:

  1. Hi! I've followed your blog for awhile. We have a 3-year old with PWS. We've been having lots of sleeping and behavior issues. Just wondering how the provigil is working now? Our son is out of bed sometimes up to 5x a night. Naps are hard and he is tired a lot. We put him on a melatonin supplement to get him asleep at night, but it wears off by 2am. Just wondering how it is going for you! You can email me at agriffithatkins@gmail.com Thanks! :)